About this blog

This blog documents the story of our family after our daughter Yasmin was diagnosed with leukaemia when she was two years old, just six weeks after our son Isaac was born. Now, three, Yasmin is on maintenance treatment for acute lymphoblastic leukaemia (ALL) until October 2014. The first post is here or you can read how we felt when we got the diagnosis and when Yasmin started the most intense phase of treatment. The main purpose of the blog is to raise awareness of childhood leukaemia and money for the different charities that have supported us during the most difficult of times. We have helped raise more than £28,000 for Great Ormond Street Children's Hospital where Yasmin is undergoing treatment. Anyone wishing to donate can do so HERE. All money raised goes directly to into research, better facilities and care. We are now also raising money for Haven House Children's Hospice and I will be climbing Ben Nevis in 2014! You can get more information on Facebook or you can follow me on twitter here.
The blog has featured in national newspapers and magazines while the BBC covered our fundraising here and ITV here.

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Thursday, 28 February 2013

REASONS TO BE CHEERFUL


This week is a glorious week. After six, long, often horrendous months of intense, at times terrifying and at others painful, treatment, Yasmin is scheduled to start maintenance tomorrow. This means intense chemotherapy is over and 18 months of maintenance chemo will begin.
In the early dark days and the times when our lives have been a living nightmare since then, as we juggled caring for a new baby with our daughter’s hospital admissions, Andrew and I consoled ourselves by saying as long as we can get through this first six months and get to maintenance everything will get easier. We just have to get through this.
Now, here we are.
As the intense chemotherapy is dependent on blood counts, Yasmin's treatment has been delayed several weeks throughout the course. The start of maintenance is also count dependent so could have been delayed yet another week. I didn’t realise how tense I was about this until the text came through from the nurse with the weekly blood count results. As soon as I saw the numbers stating Yasmin’s neutrophils were high enough to begin, I burst into tears and then sobbed uncontrollably for ten whole minutes while my daughter looked at me in alarm. A cork had been popped from a highly pressurised bottle. The relief was immense.
Yasmin combing mummy's hair
“It’s ok,” I said. “I’m happy. I’m crying because I am happy. When daddy comes home tell him we have good news.”
Yasmin is fitter now than she has been since last June. Her legs, which had wasted away after she didn’t walk for three whole months, have taken on muscle definition and can now support her well when she starts to dance, one of her favourite activities.
She is due to start nursery two mornings a week from next week and after eight months at home or in hospital she is looking forward to making new friends.

6 comments:

  1. Brilliant! That's fantastic news. Now get on your dancing shoes! :)

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  2. well done you and Yasmin

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  3. Welcome to the other side of the Dark and Gloomy Woods! You'll never need to go through them again.

    All the best.

    Dave

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    1. That comment made me cry Dave! Thank you. x

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